The Endo-MP Project

Endometriosis is a chronic condition defined by the presence of endometrial-like tissue outside the uterus. It affects approximately 10% of people of reproductive age, about 50% of people presenting with infertility and 24-40% of those with chronic pelvic pain. In Australia, one in seven (14%) people are diagnosed with endometriosis by the age of 44-49 years. The cause of endometriosis remains uncertain. The total economic burden of endometriosis and chronic pelvic pain per year in Australia is estimated at $6.50 billion (Intl). Endometriosis has critical implications for people's quality of life.

In 2018, Australia was the first country to develop a roadmap and blueprint to tackle endometriosis in a nationwide coordinated manner with the National Action Plan for Endometriosis. This plan was created in partnership between Government, endometriosis experts and advocacy groups. As part of the package, the Australian Government has funded the development of an Endometriosis Management Plan in primary care settings – which is often the first point of contact in the healthcare system for those experiencing symptoms associated with endometriosis.

The Endometriosis Management Plan (Endo-MP) project is being conducted by SPHERE Centre of Research Excellence in Sexual and Reproductive Health for Women in Primary Care in collaboration with the RACGP. The Endometriosis Management Plan will be available to all practicing GPs, and people with endometriosis and chronic pelvic pain in Australia upon national implementation in 2026. Through our investigator team, we have links to key stakeholders and partner organisations including but not limited to the Department’s Endometriosis Expert Advisory Group, Primary Health Networks (PHNs), RANZCOG, tertiary care services, and consumer groups including the Australian Coalition for Endometriosis (ACE).