The Endo-MP Project

The Endometriosis Management Plan Project

 
Endometriosis is a chronic condition defined by the presence of endometrial-like tissue outside the uterus. It affects approximately 10% of people of reproductive age, about 50% of people presenting with infertility and 24-40% of those with chronic pelvic pain. In Australia, one in seven (14%) people are diagnosed with endometriosis by the age of 44-49 years. The cause of endometriosis remains uncertain. The total economic burden of endometriosis and chronic pelvic pain per year in Australia is estimated at $6.50 billion (Intl). Endometriosis has critical implications for people's quality of life.

In 2018, Australia was the first country to develop a roadmap and blueprint to tackle endometriosis in a nationwide coordinated manner with the National Action Plan for Endometriosis. This plan was created in partnership between Government, endometriosis experts and advocacy groups. As part of the package, the Australian Government has funded the development of an Endometriosis Management Plan in primary care settings – which is often the first point of contact in the healthcare system for those experiencing symptoms associated with endometriosis.

The Endometriosis Management Plan (Endo-MP) project is being conducted by SPHERE Centre of Research Excellence in Sexual and Reproductive Health for Women in Primary Care in collaboration with the RACGP. The Endometriosis Management Plan will be available to all practicing GPs, and people with endometriosis and chronic pelvic pain in Australia upon national implementation in 2026. Through our investigator team, we have links to key stakeholders and partner organisations including but not limited to the Department’s Endometriosis Expert Advisory Group, Primary Health Networks (PHNs), RANZCOG, tertiary care services, and consumer groups including the Australian Coalition for Endometriosis (ACE).
 
Endo-MP is a mixed methods project involving three main phases across 3 years:
  • Phase 1: Consultation and Scoping Phase
  • Phase 2: Development Phase
  • Phase 3: Implementation; Pilot testing and Evaluation
The Endo-MP project aims to develop and implement an Endometriosis Management Plan to support the navigation and management of endometriosis and chronic pelvic pain for providers and their patients through primary care settings and is expected to improve the quality of life for individuals with the condition and reduce associated economic costs.

ENDOMP

Recruitment for this project have now closed

 
 
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Victorian Inquiry into Women's Pain

The Endo-MP team have put together a submission into the Victorian inquiry into Women's pain. 

The Inquiry into Women's Pain will provide recommendations to inform improved models of care and service delivery for Victorian girls and women experiencing pain in the future. As part of the Women’s Health and Wellbeing Program, the Inquiry into Women's Pain aims to address the challenges faced by girls and women seeking pain care. The Inquiry will provide recommendations to inform improved models of care and service delivery for Victorian girls and women experiencing pain in the future.

Response to the Inquiry into Women’s Pain from the Endometriosis Management Plan project team.